Tue 10 Apr 2012
This month I’ve already read the book club book. The actual book club get-together is still almost two weeks away, so I’m actually in some danger of forgetting all about it by then. I seem to have a talent for forgetting the details of a book, which can come in handy, since it justifies me keeping a copy of good books on my book-shelf – I know I can enjoy them all over again.
But this book was one that I nominated, so I really should try to remember something about it for the discussion. Hence, I’m going to note my thoughts down here, in easy-to-reference form.
A personal tale masquerading as an ethics tale hidden inside a science tale
When this book was selected for book club, it was partly on the basis that it had over 1,000 reviews on Amazon.com with an average score of 4.5 out of 5. I think this is a fair rating – there is something in this book for everyone.
The author, Rebecca Skloot, takes us through her journey of discovery regarding the family and story behind the “HeLa” line of cells – cells still alive today and involved in important science. Her close connection to the family becomes an important part of the tale, both because it allows her to access the detailed history of the family but also because it provides a very human face for the abstract cells.
The absence of such a human face is part of the context for so many of the ethical issues that occur in the history of the cell line. Examples of racism, exploitation of the poor, the law trailing scientific advances, lack of informed consent, lack of compensation, industry profiting from volunteers, scientific denial, and many others. The book is long-ish and I feel like I should’ve taken notes of these issues so that I could remember them to discuss later.
The tale is at times amazing, horrific, uplifting and sad. For me, one of the saddest aspects was how disadvantaged the family has been. Their ancestors were exploited as part of slavery on a tobacco plantation and they never seem to have escaped the legacy of that. Although, the book itself promises to assist, so perhaps the family will have a happier future than their past.